Thursday 31 May 2012

Poignant Quotes

There are wounds that never show on the body that are deeper and more hurtful than anything that bleeds.”
Laurell K. Hamilton, Mistral's Kiss

“That's the thing about depression: A human being can survive almost anything, as long as she sees the end in sight. But depression is so insidious, and it compounds daily, that it's impossible to ever see the end.”
Elizabeth Wurtzel, Prozac Nation

“I don't want to see anyone. I lie in the bedroom with the curtains drawn and nothingness washing over me like a sluggish wave. Whatever is happening to me is my own fault. I have done something wrong, something so huge I can't even see it, something that's drowning me. I am inadequate and stupid, without worth. I might as well be dead.”
Margaret Atwood, Cat's Eye

Everyone wanted me to get help and rejoin life, pick up the pieces and move on, and I tried to, I wanted to, but I just had to lie in the mud with my arms wrapped around myself, eyes closed, grieving, until I didn’t have to anymore.”
Anne Lamott, Operating Instructions

“I feel like a defective model, like I came off the assembly line flat-out fucked and my parents should have taken me back for repairs before the warranty ran out.”
Elizabeth Wurtzel, Prozac Nation

The person in whom ‘its’ invisible agony reaches a certain unendurable level will kill herself the same way a trapped person will eventually jump from the window of a burning high-rise…..The variable here is the other terror, the fire’s flames: when the flames get close enough, falling to death becomes the slightly less terrible of two terrors. It’s not desiring the fall; it’s terror of the flames. And yet nobody down on the sidewalk, looking up and yelling ‘Don’t!’ and ‘Hang on!’, can understand the jump. Not really. You’d have to have personally been trapped and felt flames to really understand a terror way beyond falling.”
David Foster Wallace

“I didn't want to wake up. I was having a much better time asleep. And that's really sad. It was almost like a reverse nightmare, like when you wake up from a nightmare you're so relieved. I woke up into a nightmare.”
Ned Vizzini, It's Kind of a Funny Story

“If you are chronically down, it is a lifelong fight to keep from sinking ”
Elizabeth Wurtzel, Prozac Nation

“Sometimes," says a fellow depressive, "I wish I was in a full body cast, with every bone in my body broken. That's how I feel anyway. Then, maybe, people would stop minimising my illness because they can actually see what's wrong with me. They seem to need physical evidence.”
Sally Brampton, Shoot The Damn Dog: A Memoir Of Depression

“In its severe forms, depression paralyses all of the otherwise vital forces that make us human, leaving instead a bleak, despairing, desperate, and deadened state. . .Life is bloodless, pulseless, and yet present enough to allow a suffocating horror and pain. All bearings are lost; all things are dark and drained of feeling. The slippage into futility is first gradual, then utter. Thought, which is as pervasively affected by depression as mood, is morbid, confused, and stuporous. It is also vacillating, ruminative, indecisive, and self-castigating. The body is bone-weary; there is no will; nothing is that is not an effort, and nothing at all seems worth it. Sleep is fragmented, elusive, or all-consuming. Like an unstable, gas, an irritable exhaustion seeps into every crevice of thought and action.”
Kay Redfield Jamison

“Depression - that limp word for the storm of black panic and half-demented malfunction - had over the years worked itself out in Charlotte's life in a curious pattern. Its onset was often imperceptible: like an assiduous housekeeper locking up a rambling mansion, it noiselessly went about and turned off, one by one, the mind's thousand small accesses to pleasure.”
Sebastian Faulks

“For six days I didn’t get up except to make a cup of tea, or fry an egg, or lie in the skinny bath gazing at a cracked ceiling. The days punished me with their slowness, piling up the hours on me, spreading their joylessness about the room.

A doctor would have said I was suffering from depression. Everything I have read since suggests this was the case. But when you are in the grip of something like that it doesn’t usefully announce itself. No. what happens is you sit in a dark, dark cave, and you wait. If you are lucky there is a pinprick of light, and if you are especially lucky that pinprick will grow larger and larger, until one day the cave appears to slip behind, and just like that you find yourself in daylight and free. This is how it happened for me.”
Lloyd Jones, Mister Pip

"When depression swoops down it degrades the self and eclipses capacity to give or receive affection. It destroys connection to others and the ability to be peaceful alone with ones self.

Large depression is the stuff of breakdowns - if one imagines a soul of iron that weathers and rusts with mild depression then major depression is the startling collapse of a whole structure

Depression is a sucking thing that had wrapped itself around me , ugly and more alive than I. It had a life of its own and bit by bit asphyxiated all the life out of me. It goes on glutting itself on me when there seems nothing left of me to feed on

Your mind is leeched until you seem dim-witted even to yourself. You smell sour to yourself"

Depression destroys the power of mind over mood.

Andrew Solomon, Noonday Demon
"This serotonin thing is part of modern neuromythology" David McDowell

Tuesday 29 May 2012

Depression hurts (literally, physically)

What the hell is wrong with me?
I hurt all over - my muscles, my joints - ankles, knees, hips, back, wrists and elbows. My mind is going fast - racing even but my body is g-o-i-n-g  s-o  s-l-o-w. I'm fighting to stay awake, conscious, alive.  Beautiful sunset last night though.



“In its severe forms, depression paralyses all of the otherwise vital forces that make us human, leaving instead a bleak, despairing, desperate, and deadened state. . .Life is bloodless, pulse-less, and yet present enough to allow a suffocating horror and pain. All bearings are lost; all things are dark and drained of feeling. The slippage into futility is first gradual, then utter. Thought, which is as pervasively affected by depression as mood, is morbid, confused, and stuporous. It is also vacillating, ruminative, indecisive, and self-castigating. The body is bone-weary; there is no will; nothing is that is not an effort, and nothing at all seems worth it. Sleep is fragmented, elusive, or all-consuming. Like an unstable, gas, an irritable exhaustion seeps into every crevice of thought and action.”
Kay Redfield Jamison

I felt OK this morning. Dropped the boys off at school....I was able to laugh, enjoy and feel a little bit good. Then it hit again. The slowness....can't keep my eyes open, can't stay conscious bone crushing exhaustion :(  I hate this - it scares me shitless.

I feel sick, nauseous - heavy. Is this depression? Really? Is there something the doctors have missed? I'm dying...am I dying? Am I already dead?

I'm constantly being crushed under the burden of my tiredness. There is no escape from it. There is no respite. I'm bone-weary, soul-breakingly exhausted every day. Every day. Every day.

Fibromyalgia and Chronic Fatigue syndrome have been discussed with me before. I was even 'diagnosed' by a specialist clinic back in the UK a couple of years before the birth of my gorgeous son. What to do though - the prescription is the same as depression. Are these syndromes just a manifestation of depression? Graded exercise, antidepressants and C.B.T. Ppppfffttt.

Well....I've now had my PhD suspended...and while I feel some relief I also feel sad (to be expected). Clearing out my office was one of the hardest things I've had to do (asides from living with depressive episodes). It was while clearing my office that I can to the realisation of how much work I have done, how organised everything is and how little there is to go. But I need to do this - I need to 'take time to smell the roses so to speak'.

I'm going to take a couple of cake decorating classes. That's something I've wanted to do for a quite some time.

Monday 21 May 2012

Retained products of conception?

Now the bleeding, cramping and pain in my right lower back have all increased - I passed a clot the size of a NZ fifty cent piece- the old one!






Of course all this has freaked me out so I went of to the after hours doctors - my GP not in until Thursday. After taking a detailed history the nurse felt that I might have retained products of conception - left behind from the D and C and I'd probably be referred to the hospital (only she added that that was a decision the doctor would have to make).

The doctor read my notes, came in to see me - we went over it all again and she felt that I could have retained products of conception or it could be my first period after the D and C. She called my GP's office and managed to get my hCG blood test results from the nurse. My hCG is down from 75000 to 20 and therefore borderline positive.

The upshot of all this is that i might have my first period and it is abnormal and more painful than a 'normal' one or I could have retained products of conception (RPOC). I'm to wait a few days and book an ultrasound if the bleeding etc doesn't taper off. Turns out I've left it too long after the D and C to qualify for a free ultrasound and it will cost me over $200.00 to check to see if the hospital didn't do their job properly!!!! I'll be asking for a refund if that is the case.....

Meanwhile we wait and I'm reminded of the miscarriage........and I wonder what will come my way next!

Friday 18 May 2012

Pain pain go away.....

Here I am then with niggling period like pain - it feels like someone is trying to pull out my uterus. My bowels are upset at the same time. I'm having that right hand side abdominal pain again.

Is this a period (where there isn't much to shed because of the D and C) or is it bleeding starting up again because of the D and C? Have I got retained tissue? God I don't know.....what the fuck is going on?! I'm both physical and psychic pain and I'm so very tired. Yesterday I felt that I just had to lie down - I was in bed with a hot water bottle just after 4pm!

More blood tests - more prophylatic antibiotics. Then back to the doctor next week if things haven't settled. Another D and C or a plevic pain specialist look likely to be on the cards for me.....oh and its been strongly recommended that I have a flu vaccine since I'm so very run down (don't believe in having the flu vaccine).


Wednesday 16 May 2012

PhD suspension - stinkin' head cold - and still with the hCG

Had a very constructive and beneficial meeting with my PhD Supervisors and DH. Upshot is that I am going to suspend my PhD until I am well enough to continue. My best option seems to be to suspend for one year although I can return whenever I feel I am well enough. I am to act as if this is a withdrawal though - in that I give up my office, return text books things like that - so that I am forced to have a complete break and not be thinking about what I think I 'should be' doing. Makes sense.
In the meantime I've come down with a stinking head cold that I just can't seem to shake.....I guess I'm so run down that I'll be prone to picking up everything that is going around for a while. Multivitamins and minerals here I come. Getting cold sores (haven't had one for over ten years) and styes in my eyes too - sure signs of being run down.

I still have sore breasts and I'm still spotting exactly three weeks to the day since the D and C. Since I still have sore breasts and my bras and jeans still don't fit again I decided - mainly out of curiosity - to take a home pregnancy test. Guess what? Still positive. Got myself into a bit of a panic that this may mean that I'm still retaining pregnancy tissue. I called the Womens' Assessment Unit and explained the situation - hCG can take anywhere from 4-6 weeks to reach undetectable levels especially if they were high to begin with - and mine were - 75000 IU/ ul

Explains the sore breasts and tingling nipples.....thank God I don't have morning sickness anymore. And I'm still getting the proctalgia fugax/levator ani or whatever it is. That pain started when I fell pregnant and was particularly bad immediately after the D and C so I wonder if it has more to do with my uterus or cervix or pelvic floor than my anus or rectum??!!! Ah well I've got a check up with my GP tomorrow - might even be free if I can give a positive pregnancy test!!!

I just want all this ill health and these upsets to end - please God haven't I suffered enough over the past year???!!


Monday 7 May 2012

My brain has gone on a wee holiday - that is all

"Think of it this way - you've been run over by several trucks over the past six months or so. It's not reasonable to expect yourself to be able to think straight or make positive decisions...of course nothing  is going to makemuch  sense. You're hurting and your injured....it takes months (sometimes years) to recover from broken bones and other injuries".

That black curtain I see; the one that comes down and stops me from thinking and doing - might be said to represent curtains drawn on a stage....I just cannot go on at the moment; I can't perform...but that doesn't mean I will never be able to perform again.

I need to try to think of things in shades of grey not black and white.

I've had two surgeries, my hormones are a mess - there are all kinds of feelings associated with things I've been through these past months...I've been trying to tell myself that I 'should' be able to ignore feelings and push on.......but for the time being I have to recognise that my feelings are in charge - my brain will be back in charge one day soon - it's just gone on a wee holiday.

It's important that I don't feel pushed or rushed to make decisions...


                           http://www.365daysofdrawing.co.uk/2011/11/intermission.html

Friday 4 May 2012

My mind has shut like a clam

...the very sight of those dense, black, barbed-wire letters made my mind shut like a clam - Sylvia Plath


My mind has shut like a clam or rather a big black curtain is drawn and I can't see anything beyond it - no future.

I've withdrawn from everyone and shut down. I am emotionally numb, too afraid too move or speak. Does anyone else experience attacks where the brain appears to shut down and its really hard to move or communicate? I feel blah and my mind says duh....and that's my day - aside from panic in between.

This could explain some of it:

 "As science gains greater insight into the consequences of stress on the brain, the picture that emerges is not a pretty one. A chronic overreaction to stress overloads the brain with powerful hormones that are intended only for short-term duty in emergency situations. Their cumulative effect damages and kills brain cells".

I've been living in such a heightened state of anxiety that I can no longer function. I feel that physically and mentally I cannot handle 'this' anymore and my mind has gone into shut down.




Thursday 3 May 2012

I just can't do this anymore

WTF am I doing?

I sit here flicking between my email inbox, Facebook, various online shopping sites, news sites...and back and forwards and back and forwards. Checking my symptoms over and over again to make sure they are consistent with depression and panic disorder. It is like a compulsion - as long as I sit by the computer and do this I'll be OK!!!

Today I feel dizzy, giddy, unsteady, weak, shaky, unstable....stumbling bumbling sure I'm going to pass out and die......flushed, hot.

Stop - check my inbox - nothing - check Facebook - nothing new. Look outside - light to bright. Hang out washing - stumble, bumble...unsteady - hold on, hold on it'll be OK. No it won't what if its not OK. OMG I'm going to die - my son won't be picked up from school or he'll come home to find me dead.

Check inbox

Feeling flushed

Check Facebook

Check inbox - no reply from husband yet about today's symptoms and fears

Ohhhhhh Goddddddddd please HELP ME.

I'm still bleeding although it easing off a little - had to call the hospital yesterday for reassurance - yes apparently it can happen......I feel as if the D and C was oversold to us - I thought it would save all this blood, clots and mess :(

Inbox....still nothing       Bank account - not much       Stuff website - no change




Inbox - reply form husband:
No, it’s not. You’re depressed, and worrying about symptoms, and have lost confidence in your ability to do lots of things. Then, as a result, you’re not doing much in the way of physical exercise so when you do try to do something requiring exertion it becomes a struggle. You need to break out of that cycle. Please allow me to take you for a walk this weekend.

No, it’s not. You’re depressed, (sure am) and worrying about symptoms (guess so), and have lost confidence in your ability to do lots of things (sure have). Then, as a result, you’re not doing much in the way of physical exercise (too scared to move) so when you do try to do something requiring exertion it becomes a struggle (maybe). You need to break out of that cycle. Please allow me to take you for a walk this weekend (OK).

Tuesday 1 May 2012

Withdrawing from my PhD

I've come to the realisation that I'd rather die than get back to work on my PhD. I've been worried all this time about being allowed to / having permission to quit. I can't tell you the relief I felt and clearly exhibited when I was told that I could.....that we'll manage.

All I had to do was call my supervisor and let her know. She obviously doesn't want me to go because she tried to convince me to suspend completely for 6 months in order to completely recover. She's going to find out about options and what would happen with regard to scholarship funds already paid to me. We'll have a meeting with all my supervisors and DH next week. I'll leave it at that for now.

I've done some good and well received work but I'm not sure its worth it to continue for my health and sanity sake. I really don't feel I will regret it. All the same - I am extremely grateful for all the support my supervisor has given and continues to try and give in order to help me complete. It's not the workplace or the people - its just the PhD I can't seem to face. I just cannot concentrate.

My head hurts badly on top today - and you know I cannot cope with headaches - they terrify me.